Showing posts with label options. Show all posts
Showing posts with label options. Show all posts

Tuesday, 25 October 2016

Is it Aging or is it the Medication-When Health Care Fails Our Elderly

October 25th, 2016

We are excited to welcome my mother-in-law back into our home for the Holiday Season. We speak to her every week and she updates us on her preparations. She has purchased thermals because, being from London, she has heard about our nasty winters. Last time she came, we had looked into her medication. In my opinion, she was on too many medications and, upon researching the specific pills she was taking throughout the day, I realized that one of the pills was NOT indicated for someone with diabetes. She is a diabetic. We spoke to her pharmacist, got her an appointment with her doctor and, much to our dismay, they just added one more pill to her regimen. We were really discouraged. It's difficult to do anything from this far away.

She came, she had a great time, she went back and stayed in high spirits for months. Lately, however, our conversations were cut short because she was out of breath. She would either avoid my husband's calls or speak very briefly because she was too tired and out of breath. We became concerned. My husband asked her to go see a doctor. She would agree to it but, when he checked in the next day, she hadn't gone. As her health declined, he finally gave her an ultimatum: go or I will call an ambulance. She went. They diagnosed her with a lung infection and sent her home with antibiotics. She had a bad reaction to the antibiotics, throwing up, diarrhea, feeling weak and, still out of breath.

My husband explained that in the UK, the class system is still very much alive When her mother goes to the clinic for help, they don't assess her medication, listen to her concerns or follow-through with tests, they simply write a prescription and send her on her way. That is how she ended up with so many pills in one day. I think it was somewhere between 9 and 11 pills, some taken multiple times per day.

A friend of my mother-in-law, Lisa, contacted my husband. They had been communicating regarding their shared concerned for her health. My husband urged her to get his mother to the hospital. She took her to the Royal Free, a reputable hospital minutes away from her home. This is a teaching hospital, the very same one that saved my husband's brother three years ago when we all thought he was dying. It didn't take long for them to notice that my mother-in-law was jaundiced, that her breathing was laboured and that she had been misdiagnosed. She did NOT have a lung infection and, she was actually having a negative reaction to the antibiotics. What she did have was a clogged artery. Tests revealed that she was also anemic. Her white cell count was so low she required a blood transfusion. She was experiencing heart failure.

The doctors are taking really good care of her. She was in good spirits when we spoke this morning, feeling stronger, knowing she had been close to death and that she shouldn't have been too stubborn to go to the hospital in the first place. The doctors have taken her off all of her medications. They will be assessing her over the next week. My husband suggested that she enjoy her stay at the hospital, treating it like a hotel. I knew she was feeling better because, while we were Face Timing, she kept looking at the state of her hair in the computer. She's a tough cookie. I am happy that she is in good hands and will probably be in excellent health by the time she comes for a visit in December. However, it disgusts me that so many elderly like her are being overly medicated. Doctors stop listening to their clients. They rush through appointments, add medications to address the latest complaint without going any further in their investigation. "Oh well, she's just getting old", they say. What if she didn't have a friend or son who care about her and push her to get assessed? She would be like one of the many elderly who end up dead through complications caused by their medications, heart attack, stroke or being misdiagnosed.

Baby boomers are aging now and, as more of them go through this flawed health system, I just know they will shake things up. This level of care is unacceptable and inhumane. We need to return to the old days where physicians visited people in their homes and looked for the cause of the symptoms rather than cover them up with chemicals. I have faith in the boomers. Demand the best, accept nothing less.

Anne Walsh
www.artnsoul.org

Friday, 30 September 2016

Resisting Healthy Choices

September 30th 2016

I walked into my husband's shop this afternoon, his client's daughter was talking about her career. She is a dietician and nutritionist but she is having doubts about her decision to commit to this line of work. She is fit and devoted to leading a healthy lifestyle. However, she finds it frustrating when she consults with clients who need to make some changes in their eating patterns but don't want to give up any of the unhealthy foods they eat. She can provide the tools for a healthier future but if they nod their head then get in line at McDs when they leave her office, there is no point. It angers her that people aren't willing to make sacrifices when it comes to their health. This is a high priority for her and she can't imagine how people can keep making poor choices when they know their health is in jeopardy.

Our conversation turned to exercise. Her background is in dance and she is now learning pole fitness. I told her I loved Zumba but there are no classes offered for mothers and their children or, during school hours for mothers on their own. I don't understand why Zumba classes, which are mostly populated with moms who are trying to shed their belly fat, are offered at times when moms are busy with their children. This client was telling me that pole fitness is great for people like myself who enjoy dancing but, while Zumba is mostly cardio, pole fitness works your muscles and core leading to more muscle definition. Sounds good to me! No pole dancing out here in Kemptville though :)

What we do have is an event at St-Micheal's High School tomorrow from 9am to 3pm. It;s called Commit to Fit and, as far as I know, it's a sampler of various types of exercise. You can see what local professionals have to offer by trying their exercise. I'll know more by tomorrow evening. I asked my poor mom to be here for 9am which means she needs to leave her home in Ottawa by 8am. I appreciate that she can be here with my children while I go workout and learn about my options. Many moms don't have anyone to watch the children. I'm sure they wish they wish they could attend this event as well. I feel very fortunate that she is here to support me.

I was going to a gym for a while. I even got a trainer. However, every time we met and I learned new moves, I would get injured. At first, she set up the treadmill and programmed it so it had a sharp incline. Before long, I had shin splints, very painful. When I went in on my own, I just walked on the flat surface, a good workout without any injuries. Then I asked her to focus on my arms. She had me pumping 10lbs on either side while on my back. It was strenuous but I imagined how toned my arms would be when I was done. I pulled a muscle and had to go to physic. It hurt when I breathed and I had limited range of movement. Lastly, I have an injury to my pelvic bone from childbirth. An osteopath recommended I steer clear of exercises that put pressure on that area. I brought this up as she led me to the machine where you push your legs together then apart against weights. I informed  her that the osteopath told me the days of doing these types of exercises were over. She still introduced one into my workout.

Finding the right fit is challenging. You want to exercise so you are healthier, feel energized and look amazing. However, you need to find the correct type of exercise so that you enjoy your workouts and look forward to them. It helps to be in a supportive environment, to click with classmates or your trainer. Having options at times that work for you can be the most difficult part. Hopefully, tomorrow, I will find Zumba or Pole fitness classes during the day, close to Kemptville. Then, let the fun begin!

Anne Walsh
www.artnsoul.org

Thursday, 25 February 2016

Parent for life

February 23rd, 2016


The issue of caring for children even into adulthood never occurred to me until a woman asked for help with her son. He was employed a few hours a week and needed a ride home from work. The mother was able to drop him off on her way to work but she couldn't bring him back home after his shift just a few hours later. Her son had just graduated from high school and this was his first opportunity to work in the community. For young adults with Asperger Syndrome, transitioning from high school can be tricky. An opportunity to gain work skills can not be passed up. I was free at the time her son was done his shift so I offered to give him a ride home.

I wasn't sure what to expect. He was waiting for me outside his workplace when I arrived on the first day. We chatted on the way home about his responsibilities at work and whatever he purchased at the store. He was able to cook his own lunch and was looking forward to eating whatever was on the menu that day. As the weeks went by, I discovered his sense of humour and he opened up about his issues with family members, clients and the neighbours. I enjoyed our chats. He was very intelligent and interesting.

I have met other parents since then and learned about the tremendous pressure of loving an adult child with Asperger Syndrome. One of my mother's colleagues has an adult son who lives with them. She is worried about the future. She and her husband are aging and they worry about who will take care of their son when they are no longer able to do it. They have another son but they don't want to burden him with the responsibility. There aren't as many options for AS than for individuals with other needs.

A friend of mine has a teenage son on the spectrum. His friends are all getting their driver's licence but he is not able to get his. There are little realizations along the way that are challenging for individuals with AS and their loved ones.

In theory, there seems to be housing options. The Asperger Autism Network website (www.aane.org), recommends factors to consider when choosing adequate housing for individuals with AS. "It's important to choose housing that will support their sensory, social and environmental needs". They must have a place where they can be alone, comfortable and quiet.

According to an article in www.autismdigest.com dated July/August 2012, "it is estimated that approximately 500,000 individuals with ASD will reach adulthood in the next 15 years". This website proposes the use of the Functional Skills Screening Inventory (FSSI) in order to "improve services through observable behaviour change and by focusing on the functional living skills needed to be an integral part of the community". Once you have assessed the individual's strengths and needs, you can examine the variety of housing options ranging from adult foster homes to supervised apartments.

As you read about independent living, supported living and group homes, it can seem that finding appropriate accommodations is simply a matter of choice. However, as I speak to parents of adults on the spectrum, the reality is that these options are not available in their community. Therefore, parents are left to care for their adult offspring on their own or, with some assistance from an agency, while their son or daughter lives with them.

I did some research and found an exciting program in Texas. You may wonder why I am bothering to report on it since it is so far away. I think it can serve as a starting point and role model to inspire discussion and innovation in our community.

Marbridge is a residential program for individuals with AS. It "fulfills all nine of the Autism Society's quality of life indicators". Young adults come to this program after high school and Marbridge provides an individualized program for them to meet their personal goals. The focus may have to do with personal skills like self-care, life skills like cooking or washing laundry or, if the individual wishes to find employment, job skills including writing a resume and preparing for interviews.

The program was founded in 1953 but it has been re-vamped in 2001 to integrate "education, socialization, recreation, independent living skills and employment instructions". Their website is www.marbridge.org. Their home page boasts a success story, detailing the many steps that were taken to get this young man to his current independent life. We need more programs like these to support the many families seeking adequate solutions.

Anne Walsh
www.artnsoul.org